1 more piece of the puzzle!!

It finally came...the phone call we had been waiting on for 3 desperately long months. The phone rang yesterday morning, & the caller ID said "Genetics". I was both deeply longing for, and simultaneously dreading that phone call. The results could either lift us up, or lower the boom.  Have you ever felt both both... Continue Reading →

3, 2, 1,…GO!!!

Today was one of those days; the kind where I am filled to the brim with hope for all that Evrett can achieve in life. Despite the rainy, windy, slightly chilly spring weather (which I actually love! The snow is almost gone, and our grass is already becoming green) keeping us indoors most of the... Continue Reading →

Limbo…

Usually, when I write, I do so once I have already processed something. Even if it is a seemingly small step on the journey, I tend to wait to write until I have wrapped my mind around something, and come to terms with whatever it is. I'm not sure WHY my process has gone this... Continue Reading →

My Capsule Wardrobe

Capsule Wardrobe huh?....At first glance, this may seem to have nothing to do with Evy and his journey...but in reality, he is the reason that I have worked hard since October 2017 to simplify our life.  He has both inspired and changed me, for the better. When we found out that, yes, there was indeed... Continue Reading →

Scaling his Mountain

I woke up this morning to my stomach doing jumping jacks. Sounds a bit odd, I know, but there is no better way to describe it. (Anyone out there who has dealt with an anxiety disorder of some sort, or has experienced strong feelings of anxiety, will likely know exactly what I mean). It's as... Continue Reading →

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