1 more piece of the puzzle!!

It finally came...the phone call we had been waiting on for 3 desperately long months. The phone rang yesterday morning, & the caller ID said "Genetics". I was both deeply longing for, and simultaneously dreading that phone call. The results could either lift us up, or lower the boom.  Have you ever felt both both... Continue Reading →

3, 2, 1,…GO!!!

Today was one of those days; the kind where I am filled to the brim with hope for all that Evrett can achieve in life. Despite the rainy, windy, slightly chilly spring weather (which I actually love! The snow is almost gone, and our grass is already becoming green) keeping us indoors most of the... Continue Reading →

Limbo…

Usually, when I write, I do so once I have already processed something. Even if it is a seemingly small step on the journey, I tend to wait to write until I have wrapped my mind around something, and come to terms with whatever it is. I'm not sure WHY my process has gone this... Continue Reading →

My Capsule Wardrobe

Capsule Wardrobe huh?....At first glance, this may seem to have nothing to do with Evy and his journey...but in reality, he is the reason that I have worked hard since October 2017 to simplify our life.  He has both inspired and changed me, for the better. When we found out that, yes, there was indeed... Continue Reading →

Scaling his Mountain

I woke up this morning to my stomach doing jumping jacks. Sounds a bit odd, I know, but there is no better way to describe it. (Anyone out there who has dealt with an anxiety disorder of some sort, or has experienced strong feelings of anxiety, will likely know exactly what I mean). It's as... Continue Reading →

Riding a Rollercoaster Blindfolded

Riding the waves of parenting a child with special needs can be much like riding a rollercoaster...actually, now that I think about it, parenting almost any child is much like riding a rollercoaster; you have no advanced warning when the bigger ups and downs are coming the majority of the time, and no way to... Continue Reading →

All I could ever have hoped for

It's been an ODD week....not in any events that have occurred or how our daily lives have gone...but an odd week within me. It is odd for me to feel as...lighthearted as I have this week (especially given how sick I have been!). I feel...happy. I feel...content. (What are those recurring "..."'s all about? Well, they are... Continue Reading →

It’s all in the little things…

I woke up Friday morning to a text from a dear friend, in which she said "...you seem to be your happiest and healthiest right now..." . Given the heaviness of adjusting to the possible diagnoses thus far for Evy, as well as the life-changing traumas we have faced since the end of 2016, a... Continue Reading →

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